And the band played on…
I don’t even know where to begin. For once in my adut life I’m truly speechless. I had taken some time off from writing as 1) I had a huge brain hit in January after some huge family stress hits, then as soon as I started getting better and got my focus back — wammo! Suddenly we’re in another pandemic. My girlfriend the infectious disease doctor is on the front lines of this (I mean how lucky am I to have acess to some of the best medical practioners to the world?!?) and she says this is her third pandemic. She was on the frontlines of AIDS in the early 80’s and of course Lyme is a pandemic but of course we still aren’t believed.
Here’s the joke — “I was right there.” I’m in the home stretch — I’ve learned so much about my body and how it runs since I last wrote to you and let me tell you I’ve been working it. I found an underground of course not FDA approved treatment called SOT last December. They use it for cancer, different strains of Lyme and co-infections and also viruses. Since I believe I’m still in remission from Lyme although I’m still suffering from some Bartonella symptoms, my gut tells me my viruses are driving this. I have had crazy high numbers of EBV, CMV and HHV-6. The joke is the SOT I did in December took a while to work but I got my energy back — literally a week before we got hit by COVID. So now I have all this energy and ready to have fun — but I can’t f’ng go anywhere. Oh the irony..
Got some news yesterday that I have a positive diagnosis of something called PANS or PANDAS. It’s actually means I have infection in my brain. While it may sound scary and of course it is, I’m actually relief because now I know what cause my brain hit, my situational clinical depession episodes I’ve had since my 30’s and it explains my anxiety and OCD and tics and panic disorder. I have answers.
But we’re in lock down. I live in Los Angeles and in my state I’m not going back to work for months as I’m in a dangerous high risk profession. And so I wait along with most of the world — can’t say all of the world because did you get a look at our beaches last week? Insanity! Thinning of the heard!
Anyways I’m fading fast. I have so much to tell you and share. This was all supposed to happen to me so that I can educate and advocate for others not as fortunate as me. But when I come back I need to tell you about my family and how crazy they are and the hell I’ve been living since last December.
Until then, live in health, be safe and find joy every day,